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#1
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Terrified
Hi Guys my 11 year daughter was diagnosed with type 1 3 weeks ago. Our world has not been the same ever since. Everyone on here sounds so calm I cant wait to get that back at some stage even a glimps of it.
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#2
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cassidy98;
I can relate to your terror! My son was diagnosed with T1, at the age of ten (10), nearly twenty-two (22) years ago. If it is any consolation to you, diabetes is much easier to manage in this day and time, plus with the advent of several sugar substitutes they can have some treats. I wish you both great success and wellness in dealing with this disease.
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Regards; Danny |
#3
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Thanks for your response. Feeling a little better since I posted last. Those first few weeks are just so scarey. I think what got to me the most was all I kept hearing is the "forever" and "no Cure" and needles for the rest of your childs life.
It pretty devastating. So we are just taking one day at a time. She seems to be handling better than me and Dad. Im now at the "it could have been worst" stage. Cassidy seems to be having hypos everyday is that normal?? |
#4
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It's weird in the honeymoon stage, which is what your daughter is in now.
Sometimes the body works with you and sometimes it works against you during that stage. Hypos could mean that her body is still working like "normal" and that her insulin injections are contributing to her lows. Honestly, find REALLY GOOD DIABETES EDUCATORS/GO TO THE JOSLIN CLINIC FOR A WEEK. If you don't feel comfortable with your educators, then find new ones and get recommendations. Where are you located?
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"I don't care what anybody says about burning myself out because I just feel like I have to do all this stuff; it's too important." - Thom Yorke |
#5
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We are in Rockhampton QLD. How do you know for sure when the honey moon period is over?
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#6
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Basically, the honey moon period is over when the body completely stops producing insulin. At this point the body is solely dependant on the injected insulin and you should see lows subside.
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Regards; Danny Last edited by dano; 04-19-2010 at 12:18 PM. |
#7
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I am sorry to hear about your Daughter . I hope things are starting to get better for you guys. I know sometimes it feels like it never will get better but trust me it does.
My daughter was just 15 months old when she was diagnosed. She is now 8 and doing well. I am not saying we dont have our issues but it is easier then when she was first diagnosed. If there is anything you need to talk about I am here for you. Just as I am sure everyone else is as well. Abbymac05 |
#8
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Thanks eveyone for your stories it makes me feel like we are not alone. Which is how we feel a lot. The school she attends feel its not appropriate that she does her insulin in the class room! They make her walk down to the office and eat by herself?? I don't know how you feel about this but I think if she is not embarrased why should they make her feel ashamed. When I approach the teacher she says that its a safety procedure?? She doesn't want to go to school any more. Not sure what to think????
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#9
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I can't say that I blame her! Is this not discrimination? Can she not eat with the other children and walk down to the nurse's station to take her shot. I realize the safety concern, but why should your daughter have to suffer this cruel treatment? It seems that nothing has changed in the public schools system. I once wrote a letter to each school board member, and their lawyer, and sent the letter registered to each person. They knew by this that I had a very good case against them and it got their attention. They rectified the problem immediately. I hope you have similar results.
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Regards; Danny |
#10
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I was reading all the post and I'm not a parent with a diabetic child, but I am a teacher and a Type 2 diabetic. I teach 2nd grade in TN and this year I had a diabetic child in my class. Her mother, the school nurse and I had a plan on how things would work concerning testing and giving shots. She always ate lunch with her class. She would check her own BG levels in the classroom, she felt comfortable enough to do that. However for shots she would go to the nurse's office by herself, especially after lunch. There were times that the nurse was out, I would help the child with her insulin, but she would go to the restroom to give herself the shot. I never pressured her to check her BG or give herself a shot in the class, I always asked what she wanted to do and she would make the decision. I think she felt more comfortable because I was dealing with the same disease she was. She carried a small backpack with her glucometer, insulin pen, extra needles for the pen, sugar tablets for lows, and snacks. She carried this to recess, to PE or she had it at her desk or I cared for it during assemblies. The other students were warned at the beginning of the year about taking other peoples stuff and/ or looking in other people's bags, so they never messed with it.
As a parent you might want to talk to the child's teacher and the nurse and come up with a plan on how to "treat" your child; let them know what they can and cannot do on their own, educational material on how to spot high and low BGs and specifically what happens to your child when they have a high or low, how you want the child to be treated and how the child feels about being diabetic. In TN, the nurse has to keep logs on each diabetic child- BG levels, insulin units given, amount of carbs eaten and where the shot was given. My parent even got a note from the child's doctor on what she needed to have in the classroom and how to handle her highs and what needed to be done if she had a low. I hope this gives you some insight on how a teacher works with a diabetic child and her parent. I know every school system/ district is different, but I believe that every child should be treated with respect whether or not they have diabetes. |
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