Hi everyone,
I read the posts and I feel for you and your little ones, it is a scary scary thing.
My son was just diagnosed we are still in the hospital. I can't sleep so I am reading the books and getting all the info and resources down while I watch him sleep. We caught it on time (early, doc said). My son is 6 almost 7.
My hearts are with you all and any advice, first hand info, or comments greatly appreciated.
Heather
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