View Single Post
  #2  
Old 07-24-2010, 04:29 PM
ppa ppa is offline
Junior Member
 
Join Date: Jan 2010
Location: California
Posts: 19
Default

Hi Ophelia,

I feel for you. It's always disconcerting when what has been working, then does not. Hey, great for you that you "rolled" with all the changes and adjusted so well at the time of your DX. I was DXd two years ago, adjusted very well initially, and have then gone through many iterations of my MDI regimen - having some tough times a year after DX. Hang in there, you will master this and eventually learn, managing T1 is constantly learning and adjusting. The more you do it, the better you get at it.

The best advice I can give you, generally, is to go here - ADA Forum:
http://bit.ly/dikRGF

Sign up and create an account so you can post. There are many wise, experienced T1s who would love to help. That being said, I would need to know more about the following to offer any input:

1: MDI or Pump?
2: Is your basal set correctly?
3: What are your I:C and correction ratios?
4: What do you eat?
5: What is your exercise regimen like?
6: What have your a1cs been like the last year?
7: What lab tests are you having done, yearly and quarterly?
8: How do you know you are a T1; did you have the GAD antibody tests done?

As well, I would highly recommend reading the following books:

1: Dr. Bernstein's Diabetes Solution: The Complete Guide to Achieving Normal Blood Sugars
2: Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin -

You will find that the best medical advice often does not come from the medical establishment. I highly recommend seeking out a T1 support group in your area, so you are not alone with this. T1s have the best info - because they have the disease. There is a lot of differing opinion about how best to manage T1. You will have to experiment and find what works for you.

You may being going through the end of a 'honeymoon" period, whereas your pancreas is producing less insulin than at DX. This is very common, though it seems a bit soon for your DX date. PM me if I can be of any further help. I know how it feels at the beginning, the folks at the ADA forum were of SO MUCH help for me at the beginning, and continue to be one of my main resources. ( I'm 2.5 years into my "D career" ) I, personally, get much better info from the experienced T1s than my CDEs and Endo. Doesn't mean that this will be the case for you. Take it all in and evaluate what makes the most sense. You are in charge of this, not the Drs.

Best,
Josh
__________________
T1 DX 4/2008
MDI

Last edited by ppa; 07-24-2010 at 04:38 PM.
Reply With Quote