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-   -   When were you diagnosed? (http://www.glucosebuddy.com/forum/showthread.php?t=18)

mtendler 01-18-2010 01:55 AM

When were you diagnosed?
 
I was diagnosed February 7, 2003. My blood sugar was 797. I told the doctor there was a mistake and that I just finished 2 cokes before I came in which was surely the cause of the high number.

ppa 01-18-2010 05:32 PM

Quote:

Originally Posted by mtendler (Post 24)
I was diagnosed February 7, 2003. My blood sugar was 797. I told the doctor there was a mistake and that I just finished 2 cokes before I came in which was surely the cause of the high number.

I had a kind of similar story.
After my sister being diagnosed 5 years previously as a T1 at age 33, I was told not to worry about it and that my numbers were fine etc. So I didn't...lol

A few years later I recognized symptoms for a while and kind of knew inside, but blew it off. I did a home A1C and it was in the 10 range. Drs. said "no way" but alas it was true. I had lost 30 pounds and in retrospect am lucky I didn't end up in the hospital as it came on slowly.

Best,
Josh

kelbyliv 01-20-2010 02:06 PM

Me too
 
I was diagnosed right before my 23rd birthday. I'm now 32 and am on an insulin pump. I got really sick and lost about 30 pounds in less than a month with constant eating and drinking of water. Finally, because of friends pushing me, I went to the Dr. My HbA1C was 15...

My insulin pump is good, but more recently I've found a strange new resistance to insulin. My endo rx'd symlin which seems to be helping.

Kelby
;0)

bgilgall 01-21-2010 01:45 AM

First diagnosed
 
I was first diagnosed at the age of 23 (I'm now 48) and was classed as a type 1.

I remember the specialist's words very clearly confirming the diagnosis, "that I can confirm that you are diabetic but it won't affect your career unless you were planning to become a pilot or something esoteric like that". Unfortunately for me I was planning to join the Royal Air Force (I'm from the UK) and afterwards move on to flying commercial aircraft for a career. He didn't say too much after I told him that.

Good job I had my degree to fall back on!!

Since then I've been re-classed as a type 1.5, I been on different types of insulin, insulin/lantus combo, pump for 8 years and back to insulin/lantus combo. I've also got insulin resistance and was prescribed symlin to help reduce insulin use but it made me feel so sick I had to come of it (even titrating the levels up slowly).

ppa 01-21-2010 01:49 AM

Quote:

Originally Posted by bgilgall (Post 71)
I was first diagnosed at the age of 23 (I'm now 48) and was classed as a type 1.

I remember the specialist's words very clearly confirming the diagnosis, "that I can confirm that you are diabetic but it won't affect your career unless you were planning to become a pilot or something esoteric like that". Unfortunately for me I was planning to join the Royal Air Force (I'm from the UK) and afterwards move on to flying commercial aircraft for a career. He didn't say too much after I told him that.

Good job I had my degree to fall back on!!

Since then I've been re-classed as a type 1.5, I been on different types of insulin, insulin/lantus combo, pump for 8 years and back to insulin/lantus combo. I've also got insulin resistance and was prescribed symlin to help reduce insulin use but it made me feel so sick I had to come of it (even titrating the levels up slowly).

Hi BG,

Remind me what 1.5 diagnosis means?

Thanks,
Josh

treenuts 01-21-2010 05:27 PM

type 1 diagnosis
 
I was diagnosed Type 1 in March 2006. In January, I had been in a bad car accident where I had fractured my pelvis in 3 places and had to learn to walk again with a walker. I was 20.
I went to the doctor thinking I had a bladder infection b/c of the frequent urination. My doctor told me their meters went up to 600 and it was still reading high. She sent me to the hospital immediately although I kept telling her I felt fine.
At the hospital, they told me their meters went up to 800, and it was still reading high. I was in DKA, and had to stay a little over a week. The Diabetes Educator told me "sometimes an extreme stressor to the body can awaken a dormant disease...".
Four years, a couple of jobs, many coping issues, and a couple of kids later, I still take the same meds I was prescribed then, Humalog and Lantus, and I do alright. Maybe if I ever get insurance back I will get a pump...=)

cafr201wife@gmail.com 01-21-2010 11:37 PM

I was diagnosed with Type 1 in November 1979. I had just turned 18. Mom took my brothers, sister and me to a screening just because it runs in the family. I remember filling out the questionnaire and answering yes to all of the questions about the symptoms. I still didn't think anything of it. A few days later, Mom picked me up from my new job and took me to the dr. and from there took me right to the hospital where I stayed for a week. I don't know what my BG or my A1c was. I had a very hard time dealing with it. I still do sometimes (often). And I hate it that the insurance plays such a big part in my health care.

wtfrazier 01-29-2010 10:00 PM

Diagnosed 12/18 Type 1
 
I will keep this short - I was diagnosed as a Type 1 on December 19, 2009. I admitted myself into hospital extremely sick on that day. Blood sugar when I went in was at 1166 (determined only thru lab analysis). I was in full tachycardia with 180 bpm and a blood pressure of 170/110.

After nearly 24 hours of insulin pump and fluids, I got down to where their BG machines could read my blood sugar levels. Took almost 2 days to stablize my blood sugar and rehydrate me.

After recovering, my doctors had told me that I probably had 4 hours to go when I came in on that Saturday morning and it would have been at best a coma for me. And to think I was going to push myself and go in on the following day, Sunday. The doctors said had I laid down on that Saturday, I probably wouldnt have woken up. Anyway, I finally got to leave the hospital after 4 days.

I have been doing good since. Actaully feel the best I have in a long time.

bevcom 02-01-2010 04:03 AM

Australian - diagnosed late august 2009
 
Hey people,
Recently diagnosed Type 1 - had it for less than 6 months. Went into doctors after drinking a lot of water and having to go to the toilet all the time! Blood sugar level was 21..

This little app is pretty cool. Look forward to using it.

type11382 02-24-2010 06:06 PM

i was diagnosed march 2005 when i was 23. One of the kids i baby-sat was diabetic and i was having a lot of the symptoms, so i checked with her meter. I was 572, thats when my mom and i went to the ER. They actually diagnosed me as type 2 at first. Then after being on meds. for a while and not seeing any affects, and seeing an Endo. they re-diagnosed me as type one. Now im on a pump and doing good.

kitlacey 02-25-2010 11:12 AM

I diagnosed myself. I had all the symptoms except the weight loss so went into the doctors saying "I think I've got diabetes" and the tests proved it. This was 11:30 yesterday morning. More tests today to get more gadgets.

I am 21 from the UK and have type 1 atm.

evan.henris 02-26-2010 10:48 PM

14 years
 
i have had it for 14 years and when i was diognosed i was 700+ and was about to go into a coma

mtendler 03-01-2010 01:44 AM

Kit

that's amazing. I remember the day after my diagnosis. So much to take on, just try to keep it together. By the way, you're going to start feeling MUCH better in a few days, so that's definitely something to look forward to!

dinglee 03-01-2010 03:04 PM

I was diagnosed a little over a month ago. My BS was 600. I didn't have insurance, so the clinic I went to sent me home with instructions to "lower blood sugar to 150" hmph. The also told me "of course you're a type 2, you're an adult (i am 31)" A week later (and after trying type 2 meds with no response) a blood test confirmed I am Type 1. Crazy crazy stuff...:confused:

tingirl 03-02-2010 11:58 PM

Diagnosed one month ago
 
Hi Everyone,

I was diagnosed last month. I had been experiencing blurry vision and I went to the eye doctor. He told me that I have cataracts and need surgery. I had to go for a pre-op physical including blood test. That is when they found my bg over 300. Since then I have been on insulin and Metformin and I am supposed to "watch my carb intake".

I am so happy to find Glucose Buddy, both the app and the web site. And now, I am doubly happy to find this forum. Just reading all the messages has helped me to learn some things. I was not told whether 300 is close to death high or just a little high. Now I know that several of you started with levels much higher.

socklesshermit 03-14-2010 01:32 AM

Quote:

Originally Posted by wtfrazier (Post 220)
I will keep this short - I was diagnosed as a Type 1 on December 19, 2009. I admitted myself into hospital extremely sick on that day. Blood sugar when I went in was at 1166 (determined only thru lab analysis). I was in full tachycardia with 180 bpm and a blood pressure of 170/110.

After nearly 24 hours of insulin pump and fluids, I got down to where their BG machines could read my blood sugar levels. Took almost 2 days to stablize my blood sugar and rehydrate me.

After recovering, my doctors had told me that I probably had 4 hours to go when I came in on that Saturday morning and it would have been at best a coma for me. And to think I was going to push myself and go in on the following day, Sunday. The doctors said had I laid down on that Saturday, I probably wouldnt have woken up. Anyway, I finally got to leave the hospital after 4 days.

I have been doing good since. Actaully feel the best I have in a long time.

Déjà vu. I can't believe how similar this sounds to my situation. My pre-diabetes stressor, as another poster put it was, believe it or not, a sun burn I got on my first day at a new job. I was having frequent urination, extreme thirst, ravenous hunger, and massive weight loss for two weeks after that. My son was born March 31, 2007, my wife and he came out of the hospital on April 1, and my wife took me back in on April 2nd with my blood sugar at 1192. I was slipping in and out of consciousness, and don't remember much about the first two days except some family visits and the diabetic educator, who explained things rather too slow for my liking.

I was 18 at the time, and the 3 year anniversary of that visit is creeping up. Fortunately I've got my son's birthday right before it, and that has distracted me both of the last 2 years.

ppgni 03-17-2010 06:56 PM

Hi, I was diagnosed on the 13th May 1976, six days after my first birthday. I have been an insulin dependent diabetic for 33 years in May. I believe I was the youngest diagnosed that that time in the UK, not sure if that is still the case LOL.

bliz 03-24-2010 04:40 AM

I was diagnosed in 1988 when I was three years old. My blood sugar was in the high 200s, I think, so definitely not bad, all things considered. I went on the pump 10 years ago, and just last week recorded my lowest A1c since diagnosis at 6.7. I'm hoping this tool will help me get it below 6.0.

darkvamp 03-24-2010 01:54 PM

Hello ;-)

I was diagnosed June 1984 when I was 8 years old. Had it for about 4 months that time.

My mother thought it was a little curious that I drink that much ;-)

After 6 weeks in the hospital I went home and did my 8. birthday party without cakes and cookies :-(

ubachay 04-03-2010 05:48 AM

Hello everyone! I was diagnosed at the age of 3 in 1988. My Dad recognized the symptoms because he is also a type 1 diabetic. 4 out of 5 of our family members are type 1, One parent, 3 kids. I am now 24, and healthy as a horse. :) I have been on an insulin pump for about 7 years now, and I absolutely love it! There is hope out there ;)

kindletheflame 04-05-2010 05:51 PM

I was diagnosed in October 1991 at the age of 9. Mom took me to the doctor because I'd been drinking so much and losing weight, and we were sent to the lab for blood tests and then got a phone call saying to go directly to the hospital. No idea what my blood sugar was at the time. I spent four days in the hosptial.

Spent my first 8 years of diabetes on two shots a day of Toronto (what we call R insulin here in Canada) and NPH, then replaced Toronto with Humalog when it became available and did that (still only two shots a day) for another 7 years. Then I finally switched to MDI with Humalog and Lantus when Lantus became available in Canada. Used that regimen for about a year and a half before moving onto the pump (mostly because of major dawn phenomenon problems), and have been pumping for the past three and a half years.

shyun623 04-16-2010 03:34 AM

Hello :D
 
Hello :D
I'm Su Hyeon Kim. I'm Korean.
I have a English name. It is "Sera".
(if you'll be ok, you could call me, "sera".)

I'm 23 years old.
I have had type 1 diabetes for 16 yrs.
I was diagnosed in December 1994 at the age of 7.

the begining of diseases, I don't had acknowledged my diseases. so, I'd got crooked.
I'd eaten sweet stuff, not insulin injection, and..... the other things...

so, I have some complications. example... retinolpathy, hypertension, forgetfulness for so many hypoglycemia... and etc...

but, I correct errors after come complications. and Now! I get better than the past. My HbA1c is 6-7%(almost 6%...).

anyway, I'm glad to meet you. ^^

dano 04-21-2010 03:47 PM

My name is Danny and I have had Type II diabetes for 12 years. Since September of 2009 I had been fighting very high blood sugars eventhough I was taking basal injections of insulin. I was tasked by my very good friend, and my Doctor (12/22/09), to get this under control as my condition had changed and I was now Type 1.5 with a HGbA1c of 11.3%. Some of you may know this condition as late blooming Type 1 or Latent Autoimmune Diabetes of Adults (LADA). I did all the research for this condition and wrote an Excel spreadsheet for calculating insulin requirements for injections, based primarily on current weight and carb intake for multiple daily injections (MDI) of the bolus dosage. I have used the GlucoseBuddy App along with several other Apps for weight loss, carb counting and exercise to lower my A1c's to 6.9% (03/29/2010) and I expect this percentage to be in the mid 5% range at my next office visit. With all of this information at my fingertips it appears that I have my diabetes in the best control, that I have seen, since I started this regimen. I thought that it was probably time for me to post this information here, since we basically all have the same condition.

bthornby 05-30-2010 03:13 AM

Type I since 1965
 
Hi everyone, my name is Bill and I've been diabetic since I was 13. I remember that at school I couldn't wait for the bell to ring so I could run to the bathroom, come out to drink the water fountain dry and run to class. It was just after Christmas break that I went to the hospital and got out after the dogwoods had bloomed.
Now I've retired after over 30 years in education, traveled all over europe on several trips, even lived in Salzburg for three months.
The way I have managed my diabetes is to try and make the very best decision I can with every choice I make. I ask a lot of questions and have changed doctors who could not provide answers. I feel my doctor and I are a team and we both need to be on the same page.
The hardest part of diabetes is that people are very complex organisms, life is always changing so that no two days are exactly the same. Managing diabetes is hard, hard work. The rewards for me are my kids, my grandkids and the freedom to travel and enjoy life as best as I can.

kmadson 06-04-2010 03:32 PM

Hey... yeah these stories all sound pretty familiar... It was before my 7th birthday that I went in to the doctors office where they told me that my blood sugars were in the 300s. I went to the hospital and come to find out they had misread my blood sugars and was in fact hovering around 1200... I had lost 20 pounds as a 7 year old (my parents just thought i was a skinny kid ha!) and got to spend 3 days in the Intensive care unit and then another 3 in the regular hospital... I am 22 now and have been on the pump for 8 years now... I cant remember the last time I have had an A1C over 7, and the pump has changed my life.

cardio-thoracic 07-30-2010 08:54 AM

Yeah, I had a pre-diabetes stressor too. For me it was a burst appendix. Got it in 2005 at age 13. I spent a year in hospitals in France, Germany and the UK. I started with Humalog and Lantus but they didn't get my blood sugar low enough so I switched to novorapid and Levemir and I have been on them ever since. I think that they should look into the pre-diabetes stressor thing to try and prevent it from happening.

leeard 08-08-2010 11:07 PM

I was diagnosed in 1981. All I remember is being sick for about a couple of weeks and losing a lot of weight. I went from 120 to 89 pounds. Been treating it with R and N insulin ever since.

Recently had a heart attack and bypass surgery (last month) and figured my new Dr would change my trearment but all he did was change my NPH dosage and give me a modified sliding scale for my R

tracy.oathout 08-26-2010 01:59 AM

I was diagnosed December of 1983 I was 7 years old. When I was rushed into the er my bs were 1179 I was in a coma for 7 days. I have had a triple bypass at 29, a heart stent pit in when I was 30, in 2003, and the most recent in 2008 a kidney transplant. Diabetes is a hard diease so to All I wish good health.

grahambartle71 08-26-2010 03:29 PM

I was diagnosed in 1971 at the age of 3, wasn't too bad (i think) as my father had been Type 1 for a number of years so my family had experience to fall back on.

jacyl 08-27-2010 07:08 AM

Jan 11, 2010
 
I am a small person. I'm a 23 year-old female at 5'1" 106 lbs. I was 89 lbs when I was admitted to the hospital Jan 11th this year. I had lost all that weight and was feeling utterly horrible when I told my husband to take me to the ER. My blood sugar was 790 and I stayed for 3 days. I'm getting the pump next month, I'm so excited!

dlaustin 09-03-2010 02:36 PM

I was diagnosed at 3 years old in 1954. As I recall, all I ever took was shots of NPH until I had retinopathy in 1979. Finally got serious about proper treatment and the doctor put me on a combination of NPH and Regular. Later, in the 1980s/1990s(?) the doctor put me on a mix of 2 other insulins, I forget which.

Then about 5 or 6 years ago, the doctor put me on Lantus and Humalog. I take the Lantus in the morning because it drops by blood glucose by about 100 pts and my wife got tired of insulin reactions in the middle of the night.

I try to keep my intake of the glucose rich carbs to a minimun and only take Humalog as its needed.

I thank my Lord every day that He has brought through 55 years of type 1 diabetes with only the loss of vision in 1 eye to show for the damages. I was pretty rebellious with life in general and diabetes in particular for about 15 or so years and that's what brought on the vision problems.

If you are a youngster with type 1 diabetes, take care of yourself and you should have a good full life with few complications, Lord willing.

Oh, 1 more thing. One of the best things I have found for keeping my BG levels from getting into the Roller Coaster mode is to take glucose tablets. How ever many points I am below 100, I'll take 1 tablet for every 15 points that I need to bring the level up. When its too high, then 1 unit of Humalog for every 50 points it needs to come down.

johnmitchellmd 09-15-2010 11:47 PM

Long history of type 1
 
In 1964 (age almost 31) I was diagnosed with "insulin independent diabetes." After 8 mos on oral meds blood sugar going up, weight going down, and frequent urination so started insulin. Initially took NPH twice daily. At this time the only way to check blood glucose was in a hospital or a doctor's office. Attempted to estimate blood glucose with urine tests (awkward, nasty, and unreliable). Lived one yr in Korea '68-'69 as Peace Corps physician, another year in Washington, and traveled twice around the world. Fairly frequent hypoglycemia. Started pumping 1998. Since diagnosis I have practiced pediatrics for 38 years (not good for a regular schedule or meals), many laser photocoagulations both eyes until eyes stabilized following vitrectomy right eye. Vision is good enough to read and drive. I have had 5 bypasses, 8 stents, and a pacemaker. Probably could have postponed complications if I could have controlled blood glucose better in earlier years, as it should be possible to do now with testing, pumping, nutritional labeling. One daughter developed Type 1 age 2 1/2 yrs, 1 yr after my diagnosis. I am grateful for mobility and I am HAPPY! God is good! Thankful for excellent medical care especially since 1980.

notafraid1021 09-16-2010 07:18 PM

When I was Young
 
Well I was diagnosed when I was 4 years old. I am now 14, and all those years I have struggled and im still struggling til today. I learned that my imune system isnt at strong as other, and I get sick more often:(. Im scared to tell people what I have because I dont want to be treat diffrently. I know other kids my age feel the same and I know older people also go through this also, but my a1c has been in 9% for a while.I set a goal to be at least 7% by the time im 16:) and I hope I for fill it:cool:
________
~Pj:p

aussielass 09-29-2010 05:02 AM

Old Hat At This Diabetes Stuff :)
 
I was diagnosed at the age of 6, after being in hospital for german measles. I was in isolation for 2 weeks because of that. Diabetes runs in our family, pity it got me though. I have had 32 years of it and yes i had my "ive had enough of diabetes" at age 13, stopped taking my meds, ate all the wrong things and ended up unconscious in hospital with 6 drips. To this day i still hate it BUT i dont have any serious problems considering i didnt (and on the odd occasion still dont) look after myself. I had heart failure in 2007 after contracting a virus that afected my heart due to being pregnant with my son and having 35kg of extra fluid in my body that ended up in my lungs and i nearly died, i also have slight foot drop on the left side (and 3 discs out in my back to contribute to that)

My mum took on diabetes but treated it and me like we werent any diff to the other kids. We never counted carbs and i still dont, we followed the 5 food group table and it worked for us and still does ..... i have my ups and downs as im not a "textbook" diabetic and dont follow the rules that says diabetics are supposed to follow this, that and the other ..... and i often follow the zamoigy effect with my BSL's :)

IF australias health system was better, i wud be on a pump but i cannot afford health insurance being a single mum with 2 children and NO support from my ex and no extra income coming in.

One can only hope & pray that they come up with a cure in my lifetime, although am not holding my breathe. TO the young ones on here, keep your chin up and if youre scared of doing it in public, dont be, theres a LOT of understanding people out there and take it from me, i councelled youngsters at diabetic camps when i was 16 about doing it in "public" ... it does get easier and people rarely notice u doing it anyway :) God, i even do mine in the car these days, while driving :)

sftbll101 10-16-2010 11:56 PM

I was diagnosed July 29, 2009, and I was 13 years old. My BG was like 364 or something, and luckily I caught it before I had to go to the hospital!! And within mounth my a1c was like 7%!!!

jowright 11-24-2010 03:35 PM

I was diagnosed 26 years ago this month at age 28!! My doctor stopped the glucose tolerance test halfway and sent me straight to the hospital for a week.

danoak78 12-28-2010 01:08 AM

I was 19 when I found out. I lost 30 lbs and when I went to the doctor my sugar reading was 480. After 4 days at the hospital I felt better and a lot smarter about diabetes. I'm now 32 and doing good but somedays are better than others.

Daniel

cello101 01-01-2011 09:11 PM

I was dignosed with Type 1 diabetes on my 3rd birthday. My mom was very upset, And I hadrosaur stay in the hospital for 3 days, overnight. I am now 14 years old and have gotten a pretty good hold of taking care of myself. My family is a huge support and I hope I'll be able to take care of myself all my life.

caileighbug2015 01-03-2011 03:42 AM

I was diagnosed on valentines day of 2008 10 mina before my valentines day party at age 10

sammags 01-09-2011 04:51 AM

I was 6 years old and lost 30 pounds! I was yelling at my mother because I thought she was taking me to school during the summer. But it was to the doctor's and soon to the hospital; where they didn't quite know how to put a iv in.. Many bruse and one week later I went home o figure my life out. Been raking care of myself since I was 14 and have had a lot of problems but now I have health insurance and the pump with no help but from my husband and his family.


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